Forum Update: Supporting Community-Led Discussion
The forum was created as a space for shared learning and peer support, and as the community grows, we want to lean more fully into that purpose.
Going forward, PAAB will be taking a more listening-first role in forum discussions. Rather than responding immediately to every question, we’ll be encouraging members to engage with one another, share experiences, and help build collective understanding. PAAB will continue to monitor conversations and will step in to:
- Correct any misunderstandings
- Provide guidance when questions remain unanswered after a few days
- Support discussions where official clarification is needed
Our goal is to foster a collaborative, trusted community where knowledge is shared and strengthened by everyone’s contributions.
Thank you for being part of the conversation.
475 - Can you describe the patient condition, consistent with the indication in your promotional material? As an example, the patient has suffered in silence many years before seeing the doctor, tried other treatments and is now seeking help. This example would be supported by authoritative sources. If not an option in promotional APS would it be possible in unbranded APS. Thank you.
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You can provide authoritative information about the disease the patient has so long as you stay within the boundaries of the indication. With regards to describing particular patients (i.e. cases), please see Q&A 469.As an aside, I am uncertain how a message relating to individuals now seeking help would be constructive in the context of patient information as the patient, by definition, has already sought help and is either on therapy or about to embark on therapy. Calling out the failings of other medications would not be acceptable in branded or unbranded APS.
