Forum Update: Supporting Community-Led Discussion
The forum was created as a space for shared learning and peer support, and as the community grows, we want to lean more fully into that purpose.
Going forward, PAAB will be taking a more listening-first role in forum discussions. Rather than responding immediately to every question, we’ll be encouraging members to engage with one another, share experiences, and help build collective understanding. PAAB will continue to monitor conversations and will step in to:
- Correct any misunderstandings
- Provide guidance when questions remain unanswered after a few days
- Support discussions where official clarification is needed
Our goal is to foster a collaborative, trusted community where knowledge is shared and strengthened by everyone’s contributions.
Thank you for being part of the conversation.
Patient organization disease information sheet
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Is it acceptable to refer to a patient organization disease information sheet which strictly discusses the disease state (no brands nor treatments mentioned), in an HCP APS?
Natalie Bourré
Marketing 4 Health Inc.
Medical Marketing Consultant, Medical Writer
nat@marketing4health.net -
Is it acceptable to refer to a patient organization disease information sheet which strictly discusses the disease state (no brands nor treatments mentioned), in an HCP APS?
Hello @natbourre
Patient organizations generally package complex information in a manner that is more easily understood by the general public. HCPs should be directed to information that was written with a higher complexity intended for more specialized consumption like recognized healthcare professional organizations or medical textbooks.
A statement referring to the sheet would need to be clear that it is for consumers or is patient information not designed for healthcare professionals. PAAB would need to assess the linkage to ensure that it is not overtly off-label.
